(Update: Dad's Brain Infection +Coma) +NPC Cancer

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ohyafumi
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I'm going to be as brief as I can because I'm very highly emotional and I should have updated this early August, but things have taken a sour turn.

I started this journal on May 9th to mention about my father's Nasopharyngeal Cancer diagnosis. Unfortunately, on July 27th, he experienced fits and was immediately warded to the I.C.U. because of his irregular brain waves (he was still in his fifth chemotherapy week out of  total of seven). They had to strap him down and sedate him at the maximum dosage in order to do an MRI scan and after 3 days they managed to find an infection in the left side of his brain. He was then treated accordingly, but the main concern is that he hasn't been able to wake up since then despite the speculation was that he should be able to after the effect goes away, but he hasn't. He has been off sedation since August 1st and still hasn't awoken from comatose.

After two weeks, another MRI scan shows that the infection has spread to 3/4 parts of his brain whereby it's swollen.
They performed a few lab tests too from his lumbar puncture and one of the results came back positive.

Basically, besides his cancer, he now has Herpes Simplex: en.wikipedia.org/wiki/Herpesvi…

He's been in the I.C.U. for one whole month and the cost has gone for more than RM200,000.00 and he had to be there to be kept alive on the ventilator and intensive care because he couldn't breathe on his own. Only yesterday they could perform a Tracheostomy on him and now he's slowly breathing again. The doctors are also at a loss on what else is there to treat him with considering they have done all they could to wake him up- including antibacterial, antivirus, antifungal, steroids, fit medications and a handful more I can hardly keep track of. Every single day I watch his brain activity start to slow down. Every single day I stare at that master monitor afraid that his heartrate would drop to 0. Every single day I try talking to him without breaking down except that it happens. I am at the hospital every single day from 8:00am to 10:00pm and only now able to update this journal.

This is what's happening at the moment, and my father is still in a coma.

I have my Twitter on public again so that updates are easier seen there: twitter.com/fumiddition
Since I hardly have time to even turn on my laptop, let alone update my dA, it's a much easier method for me to convey my updates. I also understand that I have a lot of commissions and art I still owe people, but at the moment I'm terribly unable to concentrate on anything at all. As much as I would like to refund everyone, I have absolutely nothing to give either (all that I had has been used to try and save him). I don't know what to do. I'm not strong. I'm at a loss with everything. All I ask is for you to bear with me while I go through this situation with my family and I'm really really really sorry for inconveniencing you.

I will be opening Paypal donations through the donation button hopefully in a few days when I can find the time to set it up. It would mean the world to me if you could help me help my father in any way possible. Every prayer, well wishes and thoughts count just as much as well and I cannot thank you enough, so thank you so so so much for even leaving a comment ever since May. I've been told that there is a slim to none chance of him recovering or even waking up from this as doctors have told us to prepare for the worst, but I'll keep hoping for another chance and continue to be by his side for as long as I can.




An update on my father's condition;
He will be going through radiotherapy and chemo starting next week-- I think on the 22nd, if everything goes according to plan and will last for another month. The total cost is RM60,000, which is roughly almost US$16,000. We have relatives helping to chip in what they can, but I'll be picking up commissions and stuff again when I can afford to to make it sound less painful too.

I haven't been responding to most comments, notes and such, but I did read through them and I really really appreciate the time you took to share your thoughts, well wishes and prayers. It means so so so much to me to be able to meet wonderful people like you. And even though I have been in rough waters lately, I'd like to thank you for being patient with me. I hope to keep this journal updated as his treatment progresses if I can. It's just a lot to taken in when you see parents cry as if it might be their last.

Anyway, fasting month starts tomorrow, so happy fasting to those involved~ (saves me from spending on food at least ahah)
I've also been too preoccupied and forgot that father's day is around the corner too, so don't forget to give those tough stubborn guys a good treat~
Thank you for reading~




I've been updating through my casual Twitter, so I'll share this here as well..

The story is, my father has been having severe nosebleeds for 3-4 months, but nothing too worrisome because of the weather here, only that it was to a severe 6-7 hours of non-stop bleeding a few days ago, so we got him diagnosed at the hospital. Shortly afterwards, we learned that he has Nasopharynx / Nasopharyngeal Cancer and it's at stage 3.

Thing is, both my parents haven't been working for some time now, so we have no insurance, and my younger sister only recently got a job, so I've been supporting my family through whatever I can manage with my art, especially after my father's artery blockage surgery 2 years ago and I've been ridiculously. stressed. because of this news. My friends have been really supportive and have been helping with paying for my father's diagnosis and ER bills at ungodly hours of the day, so I'm extremely thankful for that. Though eventually the cost is going to rack up to the surgery, chemo, radiotherapy and such, assuming nothing bad happens on top of it..

They're doing a biopsy on Monday to analyze the sample. It'll probably take a week or so for anymore results, so a lot of it is the waiting game. If you happen to have experience or advise I could use, I'd highly appreciate it.. Anything at all, would help me greatly.

I'm also making this journal because I know I have a lot of commissions and art to be completing, so I apologize that there will be an inconsistent delay in my performance, I'm really really sorry.. I feel terrible and unstable, eating sleeping and enjoying anything has been hard as hell, even typing this is making me cry again and I don't think it'll ease up anytime soon. I'm currently at my friend's place though, hoping I'll be able to concentrate here because I know that I have to be strong for my family.

Letting this out was hard, but I made it, and I thank you so much for even reading this.

© 2015 - 2024 ohyafumi
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Son-0f-Hades's avatar
I'm so sorry to hear this ; - ; 
I sincerely hope the best for your father. Cancer is an awful beast. I took care of my Grandpa when he had it and it was hard as hell to watch him be in pain. 
You're both in my thoughts.